Decades after rare disease diagnosis, family and physician hail

   genomic breakthrough

  Tonya and Cody Hanson have led full lives with Carey-Fineman-

   Ziter syndrome


   By Jeannine Mjoseth

   Associate Director of Communications, NHGRI


   For many years, Tonya and Cody Hanson's parents didn't know what

   caused their children to have weak facial muscles, cleft palates and

   curvature of the spine. Nor did they know what produced the phlegm

   that had to be suctioned from each child's lungs every 15 minutes for

   the first three years of their lives...   Read More


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  Copyright Cody Hanson 2017

  The content of this website is intended for informational purposes only. This site is intended

  to raise awareness of the syndrome and give parents, patients, and the medical

  community a place to gain some answers.Contact a qualified medical professional for

  proper diagnosis and treatments.