CFZsyndrome.org invites medical professonals, parents, families, with living children, and those who no longer have their children, to register with us.
Personal Information provided to CFZsyndrome.org will not be shared with any other organizations. CFZsyndrome.org will ask for your permission before allowing any persons to contact you. Our goal is to create a network of people affected by this rare syndrome to further the understanding and treatment of CFZ.
After you register you will receive a follow up email from our team.
If you are having trouble with the form above, you can email us at the link below.
Copyright Cody Hanson 2017
The content of this website is intended for informational purposes only. This site is intended
to raise awareness of the syndrome and give parents, patients, and the medical
community a place to gain some answers.Contact a qualified medical professional for
proper diagnosis and treatments.